If I could talk to my younger self, I know she’d be surprised, excited, proud, and likely a bit skeptical to learn that I’ve genuinely found fulfillment in imperfection.
Keep Doing What You're Doing
Keep Doing What You’re Doing is a compilation of inspiration, exploration, and practical tips for living with Multiple Sclerosis while living a full, productive, and healthy life with a positive perspective. It includes musings on things that help me adapt, cope and celebrate this adventure on earth.
Thursday, May 29, 2025
The Joy of Imperfection
If I could talk to my younger self, I know she’d be surprised, excited, proud, and likely a bit skeptical to learn that I’ve genuinely found fulfillment in imperfection.
Monday, April 14, 2025
Spring Presents
Wednesday, March 12, 2025
Burdens Shared
Tuesday, February 11, 2025
Fortifying Relationships
- Offer to listen, invite them to share, and make it clear there’s no expectation or pressure.
- Check in by phone, text, or email, and let them know they don’t have to respond.
- If I’m genuinely there for them at all times, make sure they know it and believe me.
- Be there for them when they reach out.
- If you’re able and it feels genuine, light up when you see them.
- Ask open-ended questions that aren't leading. Avoid asking, “So you’re doing well?” Try “How are you doing?” If they’re not doing well, they won’t need to overcome an incorrect assumption before sharing whatever they’re comfortable sharing.
- Acknowledge that my own problems may be silly and aren’t as big as theirs, but they’re what I’m experiencing. Sometimes people are sick of dealing with their own issues and would like to hear what’s going on with you.
- Share without competing. Allude to how my experiences may be similar, but be clear that I understand their situation may be completely different. How I deal with similar issues or life events may or may not help them.
- Validate their experience before providing reassurance. If the validation step is skipped, it can appear to be dismissing their feelings and reality.
- If I get emotional, be clear that the topic is hard but I’m glad they’re sharing with me.
- Be patient, and let the pauses linger. What feels like an awkward pause can be received as patience. Quiet moments help allow time to organize thoughts and gather the courage to share.
- Avoid interrupting, it can disrupt their train of thought. If I do interrupt, I’ll try to bring the conversation back to the point where I interrupted them.
- Don’t yuck someone else’s yum. What works for one doesn’t for others.
- Be okay with not agreeing with them and not understanding everything. Trust they’re doing their best, and respect their decisions.
- Appreciate the relationship, and tell them why. Share how our relationship and times together help me and make my life better.
- When people ask for help, let them know how much they’ve helped me in the past. Share how being there for them is important to me.
- Sometimes my reactions can be misconstrued or confusing. If I’m really absorbing something, I might stare and not say anything. It can sometimes lead people to reach conclusions that weren’t my intention. If I realize later that this might have happened, I want to let them know that my reaction was sincere contemplation and not judgment.
- If I perceive an interaction as difficult, follow up later. Ask if it’s okay to bring up what happened and what I think I could have done differently. See how they feel about it, and see if they agree or have other insight. If they don’t want to talk about it, reinforce the relationship and let the issue go.
Monday, January 6, 2025
New Year’s Reflection
One thing to remember about New Year’s resolutions: They are not required. If you don’t want to make any, don’t. I like them for the feeling of a fresh start and hope for a better future, but I also know that I need to be ready before I make a change. If I try before I’m ready, it will end with feelings of failure and guilt.
- What did I love about last year? Why?
- What was challenging or annoying? Why was it hard?
- What did I learn? How can that lesson help me in the future?
- Where in my life did I improve or lapse? Why do I think it changed?
- Was there anything I needed or wanted that I didn’t have? Is it possible to have them? If so, how would it be possible? If not, do I need them?
- How does answering these questions make me feel?
Monday, December 9, 2024
Wishes for Wellness
Wednesday, November 13, 2024
Moments Matter
Have you ever been in a mood and had something happen that changed it in a moment? It happens a lot, and some moments stick through the years.
I recall being at work years ago, and cheerfully saying, “Good morning!” They responded quickly and sharply, “What’s good about it?”
I don’t remember how I responded then, but I still think about how it startled me. I felt like I’d done something wrong, and I wasn’t sure what. My mood swiftly dropped from happy to resentful. This memory helped me learn the life lesson that we’re all living different experiences, and lots of interactions have nothing to do with us.
The same holds true for the ability of strangers to lift my spirits. I regularly recall the child who years ago mistook me for their mom. While I perused the shelves at eye level, I felt a tight hug around my legs paired with, “I love you.” The child looked up at me and realized I wasn’t their mom. They quickly released me and ran to their mom in embarrassment. Their mom and I exchanged a quick smile and assurance all was fine. I was left surprised by how good it felt to receive love that wasn’t even meant for me. I was grappling with immensely difficult life circumstances, and that moment lifted me up in a way I really needed at the time.
My mood shifts between highs and lows throughout the year, but it can feel even more intense during the holiday season. I’m physically managing intensified Multiple Sclerosis symptoms, and I’m emotionally managing some sadness that the holidays often bring. I’m often interacting with more people than usual and pushing myself to do more than my usual routine. The stakes seem higher, and I anticipate I won’t always be at my best. Similarly, every other person out there has their own world of stress, hardship, and expectations.
This isn’t earth-shattering, surprising insight, but reminders to think beyond my thoughts help me when I’m having a hard time. Considering how hard life is for many helps me be more patient and compassionate. When I aim to spread kindness, I feel better about myself. When I feel better about myself, I’m more likely to spread kindness. That feels good.